Misija ENDOSKOPIJA


Kratek animiran video, ki bo pomagal vašim malim bolnikom bolje razumeti osnovne principe endoskopije zgornjih prebavil, ki je včasih potrebna za opredelitev osnovnega vzroka različnih težav, kot so dolgotrajne bolečine v trebuhu, dolgotrajna driska, težave pri požiranju itd.








How to prepare a safe gluten-free meal – a sticker with the most important instructions for restaurants and households.

1

Kaj se dogaja v tankem črevesu osebe s celiakijo




What happens in the small intestine of someone with celiac disease







Policy recommendations for patient focused celiac disease management model include the guidance on how to most effectively address the challenges of CD management in the framework of existing health care systems, by using interdisciplinary approach and new innovative services. Recommendations were built upon detected knowledge and management gaps and inequalities in the region and best services and solutions designed and tested by project partners within the project. Policy recommendations provide key innovative solutions and services. Suggested recommendations could minimize health complications of CD patients in long-term period of time, therefore are crucial to be taken into consideration. To ensure quality of life of CD patients, also legal framework conditions are relevant. Two policy recommendation are suggested: ensuring basic social rights (finance, i/material) for patients of all ages and reducing the value of added tax for gluten-free products, which should be used by interested stakeholders to influence changes, to convince decision makers and to improve situation in Central Europe.

Policy recommendations fact sheet

PROJECT NEWS

CHALLENGES TACKLED BY THE FOCUS IN CD PROJECT

Among the greatest social challenges facing Europe is longer life expectancy with aging population. This fact has also contributed to increased burden of chronic diseases among European population in the past decade. Lack of development and promotion of innovative quality health service, disease management models and education in the field of management of chronic diseases, is affecting sustainability of central European health care systems.

Read more…





PROJECT SUMMARY


CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in central Europe) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life.

    Read more...




How to set up a safe gluten-free kitchen?


To the health of patients with coeliac disease even the smallest mistakes and contamination of the gluten-free products can be harmful.
In order to ensure a safe, strict gluten-free diet it is important to buy gluten-free products, but also to store and prepare them properly to be able to produce a real gluten-free meal as a result. To help with tips and suggestions on how to prepare the kitchen surfaces and rearrange the articles in the kitchen, check the “Gluten- free Kitchen” video:


e-guidelines for newly diagnosed celiac disease patients in Slovene language

Few months ago, we published our e-brochure for newly diagnosed celiac disease patients in English, we translated the comprehensive brochure into Slovene language, which is the first brochure in partner language, Croatian and Hungarian guidelines will be available soon.

Read more...

Did you know? The results of the Focus IN CD survey

Our German partner presented the results of the Focus IN CD survey in the German celiac society journal. Read the article...

Project documents


Project outputs

ICT application for doctors

E-learning tool for HealTh Care Practitioners

Policy recommendations

10 pilot projects

Assessment of Celiac Disease management practices

PROJECT IN NUMBERS

0

PARTNERS

0

TOOLS

0

PILOT PROJECTS

0

POLICY RECOMMENDATION

project duration

Start Date

June 2016

End Date

may 2019

contacts

Newsletter Registration